The Neurodiversity Transformation Project was borne out of the changes across Bristol, North Somerset, and South Gloucestershire (BNSSG) by Health, to the Paediatric and Autism assessment criteria last March 2023. The three Parent Carer Forums across BNSSG together gathered the views and concerns from families on this subject to feedback to the Integrated Care Board. Eventually, these changes were reversed in April 2023. (See below the links to Sirona and SGPC Position Statement).
Due to the concerns raised, it was realised by the Integrated Care Board (ICB) that the entire system needed to be reviewed. The Neurodiversity Transformation Project aims to inform a future model of support for children and young people with Neurodiverse needs, incorporating the views and experiences of children and young people, parent carers, and system partners is vital to the success of this project.
The project is led by the Integrated Care Board and is co-chaired by the three parent carer forums across BNSSG, involving the three local authorities, professionals across health, education, social care, voluntary sector and the voices of parent carers and children and young people.
In July 2024, Bristol, North Somerset and South Gloucestershire Parent Carer Forums held two engagement events (online and in person) to provide the community with an update on the Neurodiversity Transformation project and the six-month pilot. Below is the reports from our engagement events.